Clincierge is proud to support CISCRP in a new educational initiative to increase awareness about clinical research and the level of understanding among minority communities across the U.S.We have united to circulate an informative full-page advertorial spread highlighting the key importance of diversity in clinical studies to discover treatments that are effective for everyone.
Of the over 7,000 known rare diseases, only 5% currently have any form of treatment. With such staggering statistics, the need for increased awareness, education, and treatment options is imperative. This month we’ll be taking a deeper look at four rare diseases: Dysautonomia, Gaucher Disease, Niemann-Pick Disease, and Rett Syndrome.
Members of ethnic communities around the globe suffer from rare diseases unique to their demographic group. Designing a trial and selecting participants with diverse backgrounds that proportionally represent each demographic group is one of the first steps a sponsor can take to create a diverse and inclusive clinical trial.
Featured in Applied Clinical Trials: Decentralized trials are the way of the future—yet it would be ill-advised to think of them as a one-size-fits-all solution. While the pandemic increased the industry’s acceptance of decentralized clinical trial protocols, moving to an entirely virtual model without in-person interaction is unrealistic. This sort of hybrid approach allows researchers …
COVID-19 and the Changing Landscape of Clinical Trials Read More »
A rare disease diagnosis poses more questions than answers for parents learning that their child has a severe and often untreatable condition. According to the National Organization for Rare Disorders (NORD), there are over 7,000 known rare diseases, with 90% of these having no effective treatment. Obtaining a diagnosis is only the first step and …
September is Newborn Screening Awareness Month Newborn Screening is a modern medical practice many believe to be the most successful public health program in United States history. Since the 1960s, every infant born in America receives a heel prick within the first 48 hours of life. The resulting dried blood is then tested for a …
Newborn Screening Awareness Month: Creating a Federalized Screening Program Read More »
Featured in Pharmaceutical Outsourcing: Losing a single patient during a clinical trial can mean giving up crucial data and extending trial timelines, often resulting in significant financial repercussions for trial sponsors and their research partners.
Prioritizing Patient Safety, Recruitment, and Retention Almost two years after its initial outbreak, COVID-19 continues to cause numerous problems for sites, sponsors, and patients enrolled in clinical trials. New disease variants are creating an increase in cases, resulting in additional barriers to clinical trial participation. For patients in the rare disease space, these issues further …
COVID-19 Solutions: Prioritizing Safety, Recruitment, and Retention Read More »
Personalized Patient Support Services to Facilitate Alzheimer’s Clinical Trials Over 6.2 million Americans are living with Alzheimer’s disease. This number is expected to increase by 13 million in 2050. These numbers are daunting and will only continue to grow with time. Earlier this month, Clincierge’s CEO Scott Gray participated in an interview with MedicalResearch.com to …
Patient Support Services to Facilitate Alzheimer’s Clinical Trials Read More »
The medical community and cultural opinion agree: clinical trials need diversity. It’s our job to serve affected populations, but we cannot do that if we don’t have an appropriate representation of these populations in our research. Minorities are often more at risk for the disease yet are egregiously underrepresented in clinical trials. Understanding why and …
Achieving Clinical Trial Diversity Through Actionable Steps Read More »
View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.
