Education

2023 Rare Disease Day: Getting Involved to Support the Rare Disease Community

2023 Rare Disease Day: Getting Involved to Support the Rare Disease Community

Education / By

Each February, the rare disease community joins together to celebrate Rare Disease Month. Started in 2008 by the European Organization for Rare Diseases (EURORDIS), the event brings together rare disease patients, caregivers, and advocacy organizations across the globe to advance awareness and increase research opportunities. The Rare Disease Month celebration culminates in Rare Disease Day, …

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ESG Ratings FAQs: The Process, Rating Levels, and Reason Why They Matter

ESG Rating FAQs: The Process, Rating Levels, and Reasons Why They Matter

Education, FAQ / By

EcoVadis, the leading global supply chain environmental, ethical, and social performance ratings platform, recently awarded Clincierge a Bronze rating. This score places Clincierge in the top 50% of all companies evaluated by EcoVadis. Clincierge Earns Bronze Sustainability Rating from EcoVadis Clincierge was recognized for the following in this inaugural business review: Commitment to employee diversity …

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Hiring our Heroes

Hiring our Heroes Fellowship Program

Diversity, Education / By

Clincierge is proud to announce our partnership with the Hiring our Heroes (HOH) organization. Founded in 2011, HOH connects United States military service personnel, veterans, spouses, and caregivers to employers across the country. What is the Hiring our Heroes Program? Highly skilled individuals are paired with civilian employers searching for candidates with specific skill sets …

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Health Equity and DEI: Are They Synonymous?

Health Equity and DEI: Are They Synonymous?

Diversity, Education / By

Due to a lack of health equity and many existing health disparities for rare disease patients, their access to clinical trial participation is often greatly diminished. With limited education and finances, many do not know about trial opportunities, while others cannot fathom the additional costs of participating.

Patient Concierge Services: Providing 1:1 Support to Clinical Trial Participants

Education / By

Most people understand the responsibilities of a hotel concierge. This person assists guests with navigating the new city they are visiting and books reservations for area tours, restaurants, and entertainment options. They are willing to assist with any request, no matter how large or small. However, many do not understand the role of a patient …

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Newborn Screening Awareness Month: Advances Toward a Federalized Screening Program

Newborn Screening Awareness Month: Advances Toward a Federalized Screening Program

Education / By

September is Newborn Screening Awareness Month. Since the 1960s, every infant born in America receives a heel prick within the first 48 hours of life. The dried blood is then tested for various genetic, endocrine, and metabolic disorders. When the test detects a specific disease, families are educated, and a life-changing treatment plan is quickly …

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Women's Equality Day: Increasing Employee Equity Through Hiring Our Heroes Fellowship Program

Women’s Equality Day: Increasing Employee Equity Through Hiring Our Heroes Fellowship Program

Diversity, Education / By

Today Clincierge celebrates Women’s Equality Day. In 1971, Congress designated August 26th as Women’s Equality Day to remind us of the past, present, and future struggles women face in their stride toward equality. At Clincierge, we foster a corporate culture of diversity, equity, and inclusion. Clincierge leadership continually evaluates and strives to improve the level …

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Telehealth

Alleviating Difficulties in Telehealth: The Clincierge Patient Support Model

Education / By

The onset of COVID-19 brought about many changes in how patients connected with healthcare providers and clinical trial sites. Seemingly overnight, physicians had to pivot to accommodate patients who needed to continue their treatment regimen while observing social distancing. The usage of telemedicine skyrocketed, with patients contacting their providers and site staff via telephone and …

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Americans with Disabilities Act (ADA) Awareness Day

Americans with Disabilities Act (ADA) Awareness Day

Education / By

Each year on July 26, Americans with Disabilities Act (ADA) Awareness Day is celebrated in the United States. Signed into law in 1990 by then-President George H.W. Bush, the Americans with Disabilities Act prohibits discrimination and promotes equal opportunities for those with disabilities. The Americans with Disabilities Act is divided into five separate sections, as …

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Voice of the Patient Research

View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.

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