patient support services

Patient Concierge Services: Providing 1:1 Support to Clinical Trial Participants

Most people understand the responsibilities of a hotel concierge. This person assists guests with navigating the new city they are visiting and books reservations for area tours, restaurants, and entertainment options. They are willing to assist with any request, no matter how large or small. However, many do not understand the role of a patient …

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Newborn Screening Awareness Month: Advances Toward a Federalized Screening Program

Newborn Screening Awareness Month: Advances Toward a Federalized Screening Program

September is Newborn Screening Awareness Month. Since the 1960s, every infant born in America receives a heel prick within the first 48 hours of life. The dried blood is then tested for various genetic, endocrine, and metabolic disorders. When the test detects a specific disease, families are educated, and a life-changing treatment plan is quickly …

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Americans with Disabilities Act (ADA) Awareness Day

Americans with Disabilities Act (ADA) Awareness Day

Each year on July 26, Americans with Disabilities Act (ADA) Awareness Day is celebrated in the United States. Signed into law in 1990 by then-President George H.W. Bush, the Americans with Disabilities Act prohibits discrimination and promotes equal opportunities for those with disabilities. The Americans with Disabilities Act is divided into five separate sections, as …

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June is Alzheimer's & Brain Awareness Month

June is Alzheimer’s & Brain Awareness Month

Celebrated since 1983, Alzheimer’s & Brain Awareness Month is observed each June to raise awareness of the most common form of dementia. Dementia is an umbrella term for a group of medical conditions characterized by brain impairments that affect one’s daily life. These conditions include Alzheimer’s disease, Parkinson’s disease, Huntington’s disease, frontotemporal, vascular, normal pressure …

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Voice of the Patient Research

View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.

Voice of the patient