Clincierge CEO Scott Gray recently joined Michael McNutt of The Collective Voice of Health IT, a WEDI Podcast, to discuss diversity in clinical trials, the need for increased minority representation, and improving the overall patient experience.
On May 9, 1992, the United States (US) Senate passed joint resolution 174 designating the month of May as National Amyotrophic Lateral Sclerosis (ALS) Awareness Month. The celebration raises awareness of ALS, a rare and debilitating neurodegenerative disease affecting brain and spinal cord nerve cells. The ALS Association was established in 1985 to support individuals …
ALS Awareness Month 2023: Whatever It Takes to Find A Cure Read More »
The history of Autism Awareness Month dates back more than 50 years to April 1970, when the Autism Society of America (ASA) first observed this month-long celebration. In 2021, the organization changed the name of the observance to Autism Acceptance Month to focus on accepting all individuals with this disorder. “While we will always work …
Autism Month 2023: Shifting from Autism Awareness to Acceptance Read More »
Each year on March 26th, epilepsy advocates in more than 80 countries celebrate Purple Day. Starting as an annual event in 2008, participants are asked to wear purple to bring awareness to this group of chronic neurological disorders characterized by repeated seizures. Currently, only Canada recognizes Purple Day as an official holiday, but epilepsy ambassadors …
Purple Day 2023: Raising Awareness for Rare Epilepsies Read More »
Each February, the rare disease community celebrates Rare Disease Month. Started in 2008 by the European Organization for Rare Diseases (EURORDIS), the event brings together rare disease patients, caregivers, and advocacy organizations across the globe to advance awareness and increase research opportunities. The Rare Disease Month celebration culminates in Rare Disease Day, held annually on the “rarest day” of the year.
Featured in Clinical Researcher: Scott Gray, CEO, discusses the business case for patient experience, including the patient’s role in clinical trial return on investment (ROI), the benefits of patient centricity, and investing in patient experience.
In 1992, then-President George H.W. Bush designated the month of May as National Amyotrophic Lateral Sclerosis (ALS) Awareness Month with the signing of Proclamation 6426. In the years since, ALS patients, healthcare providers, and advocacy groups have used May of each year to bring attention to this rare disease that attacks the central nervous system. …
Amyotrophic Lateral Sclerosis (ALS) Awareness Month 2022 Read More »
The history of Autism Awareness Month dates back more than 50 years to April of 1970, when the Autism Society of America (ASA) first observed this month-long celebration. In 2021, the organization changed the name of the observance to Autism Acceptance Month to focus on accepting all individuals with this disorder. “While we will always …
Autism Acceptance Month 2022: A Shift from Autism Awareness to Acceptance Read More »
Since 2008, epilepsy advocates in more than 80 countries have celebrated Purple Day, bringing to light a group of chronic neurological disorders characterized by repeated seizures. On March 26th annually, participants are asked to wear purple and participate in epilepsy awareness events. Only Canada currently recognizes Purple Day as an official holiday, but epilepsy ambassadors …
Purple Day 2022: Raising Awareness for Rare Epilepsies Read More »
Emotions of fear and uncertainty often flood an individual when they first receive a rare disease diagnosis. Many patients will require assistance with daily tasks and transportation and logistics involved in various doctor’s appointments, treatment methods, and at times, participation in a clinical trial. Patients reach out to family and friends who act as caregivers, …
One-on-One Support: Improving Patient and Caregiver Experiences in Clinical Trials Read More »
View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.
