The term “supplier diversity” is becoming very popular, but what exactly does it mean for businesses in general and those within the clinical trial industry specifically? Below we look deeper into the definition of the term, how it came to be, and how to better embrace the practice moving forward. Clincierge is a Diverse Supplier …
The month of July is Sarcoma Awareness Month, honoring all who have been affected by this rare and often deadly form of cancer. The observance is also used to raise awareness of the needs of those living with the disease, including patients, caregivers, families, and friends. What is Sarcoma? Sarcoma is a broad term for …
Wear Yellow Day 2023: Clincierge Supports Sarcoma Awareness Read More »
Clincierge is proud to support CISCRP in a new educational initiative to increase awareness about clinical research and the level of understanding among minority communities across the U.S.We have united to circulate an informative full-page advertorial spread highlighting the key importance of diversity in clinical studies to discover treatments that are effective for everyone.
A recent article by Applied Clinical Trials references a widely-held statistic that as few as 5% of eligible patients have participated in a clinical trial related to their disease. While some within the pharmaceutical industry debate the validity of this figure, all agree the low level of participation is concerning for all clinical research stakeholders.
On May 9, 1992, the United States (US) Senate passed joint resolution 174 designating the month of May as National Amyotrophic Lateral Sclerosis (ALS) Awareness Month. The celebration raises awareness of ALS, a rare and debilitating neurodegenerative disease affecting brain and spinal cord nerve cells. The ALS Association was established in 1985 to support individuals …
ALS Awareness Month 2023: Whatever It Takes to Find A Cure Read More »
The history of Autism Awareness Month dates back more than 50 years to April 1970, when the Autism Society of America (ASA) first observed this month-long celebration. In 2021, the organization changed the name of the observance to Autism Acceptance Month to focus on accepting all individuals with this disorder. “While we will always work …
Autism Month 2023: Shifting from Autism Awareness to Acceptance Read More »
A research paper entitled Estimating the Financial Impact of Gene Therapy in the U.S. by The National Bureau of Economic Research (NBER) estimates that 1.09M Americans will receive gene therapy between January 2020 and December 2034. A relatively new science, many have heard of the technology but are unsure what it is or how it …
Gene and Cell Therapy: Treating Diseases at the Molecular Level Read More »
March is National Developmental Disabilities (DDAM) Awareness Month, aimed at increasing awareness around and acceptance of the many individuals with developmental disabilities. In 2020, the United States Census Bureau reported 40.6M Americans, or almost 13% of the United States population, had one or more disabilities. Of this number, approximately 1 in 6 US children had …
Developmental Disabilities Awareness Month: Celebrating Abilities in All Stages of Life Read More »
Each year on March 26th, epilepsy advocates in more than 80 countries celebrate Purple Day. Starting as an annual event in 2008, participants are asked to wear purple to bring awareness to this group of chronic neurological disorders characterized by repeated seizures. Currently, only Canada recognizes Purple Day as an official holiday, but epilepsy ambassadors …
Purple Day 2023: Raising Awareness for Rare Epilepsies Read More »
Each February, the rare disease community celebrates Rare Disease Month. Started in 2008 by the European Organization for Rare Diseases (EURORDIS), the event brings together rare disease patients, caregivers, and advocacy organizations across the globe to advance awareness and increase research opportunities. The Rare Disease Month celebration culminates in Rare Disease Day, held annually on the “rarest day” of the year.
View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.
