clinical trial

Patient Concierge Services: Providing 1:1 Support to Clinical Trial Participants

Most people understand the responsibilities of a hotel concierge. This person assists guests with navigating the new city they are visiting and books reservations for area tours, restaurants, and entertainment options. They are willing to assist with any request, no matter how large or small. However, many do not understand the role of a patient …

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Newborn Screening Awareness Month: Advances Toward a Federalized Screening Program

Newborn Screening Awareness Month: Advances Toward a Federalized Screening Program

September is Newborn Screening Awareness Month. Since the 1960s, every infant born in America receives a heel prick within the first 48 hours of life. The dried blood is then tested for various genetic, endocrine, and metabolic disorders. When the test detects a specific disease, families are educated, and a life-changing treatment plan is quickly …

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Americans with Disabilities Act (ADA) Awareness Day

Americans with Disabilities Act (ADA) Awareness Day

Each year on July 26, Americans with Disabilities Act (ADA) Awareness Day is celebrated in the United States. Signed into law in 1990 by then-President George H.W. Bush, the Americans with Disabilities Act prohibits discrimination and promotes equal opportunities for those with disabilities. The Americans with Disabilities Act is divided into five separate sections, as …

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June is Alzheimer's & Brain Awareness Month

June is Alzheimer’s & Brain Awareness Month

Celebrated since 1983, Alzheimer’s & Brain Awareness Month is observed each June to raise awareness of the most common form of dementia. Dementia is an umbrella term for a group of medical conditions characterized by brain impairments that affect one’s daily life. These conditions include Alzheimer’s disease, Parkinson’s disease, Huntington’s disease, frontotemporal, vascular, normal pressure …

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Amyotrophic Lateral Sclerosis ALS Awareness Month

Amyotrophic Lateral Sclerosis (ALS) Awareness Month 2022

In 1992, then-President George H.W. Bush designated the month of May as National Amyotrophic Lateral Sclerosis (ALS) Awareness Month with the signing of Proclamation 6426. In the years since, ALS patients, healthcare providers, and advocacy groups have used May of each year to bring attention to this rare disease that attacks the central nervous system. …

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Understanding Clinical Trials: Frequently Asked Questions

Understanding Clinical Trials: Frequently Asked Questions

Are you new to the healthcare industry and want to learn more about clinical trials? Or are you curious about the specifics of patient care during clinical trials? Clinical trials are often complex studies that span multiple years, with a wide variety of professionals taking an active role. This blog breaks down the critical stages …

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Autism Acceptance Month 2022 Shift from Autism Awareness to Acceptance

Autism Acceptance Month 2022: A Shift from Autism Awareness to Acceptance

The history of Autism Awareness Month dates back more than 50 years to April of 1970, when the Autism Society of America (ASA) first observed this month-long celebration. In 2021, the organization changed the name of the observance to Autism Acceptance Month to focus on accepting all individuals with this disorder. “While we will always …

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Purple Day 2022 Awareness Rare Epilepsy

Purple Day 2022: Raising Awareness for Rare Epilepsies

Since 2008, epilepsy advocates in more than 80 countries have celebrated Purple Day, bringing to light a group of chronic neurological disorders characterized by repeated seizures. On March 26th annually, participants are asked to wear purple and participate in epilepsy awareness events. Only Canada currently recognizes Purple Day as an official holiday, but epilepsy ambassadors …

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One-on-One Support: Improving Patient and Caregiver Experiences in Clinical Trials

One-on-One Support: Improving Patient and Caregiver Experiences in Clinical Trials

Emotions of fear and uncertainty often flood an individual when they first receive a rare disease diagnosis. Many patients will require assistance with daily tasks and transportation and logistics involved in various doctor’s appointments, treatment methods, and at times, participation in a clinical trial. Patients reach out to family and friends who act as caregivers, …

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Voice of the Patient Research

View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.

Voice of the patient