A recent article by Applied Clinical Trials references a widely-held statistic that as few as 5% of eligible patients have participated in a clinical trial related to their disease. While some within the pharmaceutical industry debate the validity of this figure, all agree the low level of participation is concerning for all clinical research stakeholders.
Due to a lack of health equity and many existing health disparities for rare disease patients, their access to clinical trial participation is often greatly diminished. With limited education and finances, many do not know about trial opportunities, while others cannot fathom the additional costs of participating.
Founded by Dr. Carter G. Woodson in 1926 and officially recognized by President Gerald Ford in 1976, Black History Month is a time to honor the contributions and legacy of African Americans throughout U.S. history and raise awareness of the challenges they face. This year’s Black History Month theme is “Black Health and Wellness,” focusing …
Black History Month: Shining a Light on Equity in Healthcare Read More »
View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.
