Alzheimer's Awareness and National Caregiver Month

Alzheimer’s Awareness and National Family Caregivers Month

The month of November is Alzheimer’s Awareness Month and National Family Caregivers Month (NFCM). Alzheimer’s disease is a progressive and often debilitating form of dementia, and patients need an increased level of care as the disease progresses. Those who provide care for patients with Alzheimer’s disease often require their own support system, as the physical and emotional stress can be difficult to process alone.

Native American Heritage Month Improve access

Native American Heritage Month – Improving Access and Health Equity

During November, we embrace the cultural diversity of Native Americans while also recognizing the historical controversy and challenges they face. This total of almost 10 million people accounts for 2.9% of the entire United States population. Many Native communities, often residing on reservation lands, face steadily increasing obstacles such as limited resources, increased poverty, diminished access to healthcare services, and certain rare conditions.

cancer awareness no-shave november

No-Shave November: Cancer Awareness Month

Through the month of November, “No-Shave” participants let their hair grow as a way to start conversations and raise money for cancer research. Participants pledge to donate the cost of hair grooming for the month – from several dollars for razors to hundreds for a hair salon visit – to fund cancer research and increase cancer awareness.

rare disease awareness rare disease patients

Raising Awareness for Rare: October

Of the over 7,000 known rare diseases, only 5% currently have any form of treatment. With such staggering statistics, the need for increased awareness, education, and treatment options is imperative. This month we’ll be taking a deeper look at four rare diseases: Dysautonomia, Gaucher Disease, Niemann-Pick Disease, and Rett Syndrome.

newborn screening awareness month clinical trial

Newborn Screening Awareness Month: Creating a Federalized Screening Program

September is Newborn Screening Awareness Month Newborn Screening is a modern medical practice many believe to be the most successful public health program in United States history. Since the 1960s, every infant born in America receives a heel prick within the first 48 hours of life. The resulting dried blood is then tested for a …

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covid-19 patient safety travel recruitment retention

COVID-19 Solutions: Prioritizing Safety, Recruitment, and Retention

Prioritizing Patient Safety, Recruitment, and Retention Almost two years after its initial outbreak, COVID-19 continues to cause numerous problems for sites, sponsors, and patients enrolled in clinical trials. New disease variants are creating an increase in cases, resulting in additional barriers to clinical trial participation. For patients in the rare disease space, these issues further …

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Improving Patient Diversity, Access and Awareness in Rare Disease Clinical Trials

Members of ethnic communities around the globe suffer from rare diseases unique to their demographic group. Their genetic makeup makes them more susceptible to hereditary issues which affect generation after generation. Designing a trial and selecting participants with diverse backgrounds that proportionally represent each demographic group is one of the first steps a sponsor can …

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Voice of the Patient Research

View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.

Voice of the patient