rare disease awareness month Archives

Rare Disease Month: Overcoming Obstacles on the Road to Gold

Education, General Interest / By Suzanne Hamberger

Clincierge celebrates Rare Disease Month throughout February. Since 2008, rare disease patients, caregivers, and advocacy organizations have joined together to bring awareness to the almost 7,000 known rare diseases. February is Rare Disease Month because it contains the “rarest” number of days. The month culminates in Rare Disease Day, held annually on the last day …

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The ‘voice of the patient’ needs to be heard in clinical trials: study

Raising Awareness for Rare: January

Education / By Suzanne Hamberger

In our January edition of Raising Awareness for Rare, we explore cervical cancer, glaucoma, and thyroid diseases and their rare disease subgroups. January starts a month-long initiative to raise awareness and promote advocacy efforts for each of these diseases. Learn more about the rare subgroups of these historically common illnesses and how each condition impacts …

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rare disease awareness rare disease patients

Raising Awareness for Rare: October

Education / By Suzanne Hamberger

Of the over 7,000 known rare diseases, only 5% currently have any form of treatment. With such staggering statistics, the need for increased awareness, education, and treatment options is imperative. This month we’ll be taking a deeper look at four rare diseases: Dysautonomia, Gaucher Disease, Niemann-Pick Disease, and Rett Syndrome.

rare disease awareness month

Rare Disease Month: Overcoming Obstacles on the Road to Gold

Raising Awareness for Rare: January

Raising Awareness for Rare: October

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