voice of the patient

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Amplifying the Voice of the Patient in Rare Disease Trials

Media Coverage /

Featured in SCRS InSite Journal: Scott Gray, CEO, discusses patient recruitment and retention, two of the most pressing challenges facing clinical research today. Continue reading to learn more about understanding the financial, logistical, and emotional barriers to participation, the consequences of poor retention and enrollment, actionable steps to improve trial outcomes, and other key findings […]

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SCRS Talks Patient Retention Challenges and Solutions

SCRS Talks: Patient Retention Challenges and Solutions

Media Coverage, Podcast /

In this SCRS Talks podcast, Scott Gray, CEO, highlights statistics from an independent, IRB-approved survey of patients and caregivers regarding participation in clinical trials. Learn about the financial risks of patient dropouts and trial delays, plus practical strategies for making trial participation easier and encouraging patient retention. 

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Rare Disease Trial Participants Need Extra Support and Assistance, Survey Shows

Rare Disease Trial Participants Need Extra Support and Assistance, Survey Shows

Media Coverage /

Featured on CenterWatch.com: Newly published results from a survey, conducted by the patient support service company Clincierge, found that 95 percent of the trial participants responded and 98 percent of their caregivers considered it essential to have a single point of contact to help them throughout a trial, especially when arranging travel plans.

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Practical Tips to Boost Clinical Trial Participation and Retention

Practical Tips to Boost Clinical Trial Participation and Retention

Media Coverage /

Featured on ACRPnet.org: Looking for ways to increase participation in your clinical trials? First, stop calling participants “subjects,” says Scott Gray, CEO of Clincierge, whose organization just released a research report, “Voice of the Patient,” examining the patient experience in clinical trials of rare diseases. “They are volunteers, they are human beings,” Gray says.

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BIO panel takes on patient recruitment, retention challenges

BIO Panel Takes on Patient Recruitment, Retention Challenges

Media Coverage /

During BIO International, a group of industry experts discussed patient recruitment and retention challenges in the panel discussion Participant Sensitivity: Amplifying the Voice of the Patient in Clinical Trials on Monday, June 13. Outsourcing-Pharma spoke with Clincierge CEO Scott Gray, the moderator of the talk, to get a sneak peek at the session.

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The ‘voice of the patient’ needs to be heard in clinical trials: study

The ‘Voice of the Patient’ Needs to be Heard in Clinical Trials: Study

Media Coverage /

Featured in The Science Advisory Board: Patient recruitment and retention are among the biggest challenges facing clinical research, particularly in studies targeting rare diseases that have a limited pool of patients, contends Clincierge CEO Scott Gray. At the 2022 Biotechnology Innovation Organization (BIO) International Convention, Clincierge will release the results of an independent, institutional review

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One-on-One Support: Improving Patient and Caregiver Experiences in Clinical Trials

One-on-One Support: Improving Patient and Caregiver Experiences in Clinical Trials

Education /

Emotions of fear and uncertainty often flood an individual when they first receive a rare disease diagnosis. Many patients will require assistance with daily tasks and transportation and logistics involved in various doctor’s appointments, treatment methods, and at times, participation in a clinical trial. Patients reach out to family and friends who act as caregivers,

One-on-One Support: Improving Patient and Caregiver Experiences in Clinical Trials Read More »

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