voice of the patient

Practical Tips to Boost Clinical Trial Participation and Retention

Practical Tips to Boost Clinical Trial Participation and Retention

Featured on ACRPnet.org: Looking for ways to increase participation in your clinical trials? First, stop calling participants “subjects,” says Scott Gray, CEO of Clincierge, whose organization just released a research report, “Voice of the Patient,” examining the patient experience in clinical trials of rare diseases. “They are volunteers, they are human beings,” Gray says.

BIO panel takes on patient recruitment, retention challenges

BIO Panel Takes on Patient Recruitment, Retention Challenges

During BIO International, a group of industry experts discussed patient recruitment and retention challenges in the panel discussion Participant Sensitivity: Amplifying the Voice of the Patient in Clinical Trials on Monday, June 13. Outsourcing-Pharma spoke with Clincierge CEO Scott Gray, the moderator of the talk, to get a sneak peek at the session.

The ‘voice of the patient’ needs to be heard in clinical trials: study

The ‘Voice of the Patient’ Needs to be Heard in Clinical Trials: Study

Featured in The Science Advisory Board: Patient recruitment and retention are among the biggest challenges facing clinical research, particularly in studies targeting rare diseases that have a limited pool of patients, contends Clincierge CEO Scott Gray. At the 2022 Biotechnology Innovation Organization (BIO) International Convention, Clincierge will release the results of an independent, institutional review …

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One-on-One Support: Improving Patient and Caregiver Experiences in Clinical Trials

One-on-One Support: Improving Patient and Caregiver Experiences in Clinical Trials

Emotions of fear and uncertainty often flood an individual when they first receive a rare disease diagnosis. Many patients will require assistance with daily tasks and transportation and logistics involved in various doctor’s appointments, treatment methods, and at times, participation in a clinical trial. Patients reach out to family and friends who act as caregivers, …

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Caring for Rare The Elevated Cost of Rare Disease Patient Care

Caring for Rare: The Elevated Cost of Rare Disease Patient Care

A recent study by the National Institute of Health’s National Center for Advancing Translational Sciences (NCATS) found the costs associated with rare disease patient care are between three to five times higher than the costs to treat those with more common illnesses. In fact, in the United States, a rare disease affects less than 1 …

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Voice of the Patient Research

View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.

Voice of the patient