rare epilepsy

Purple Day 2023: Raising Awareness for Rare Epilepsies

Purple Day 2023: Raising Awareness for Rare Epilepsies

Each year on March 26th, epilepsy advocates in more than 80 countries celebrate Purple Day. Starting as an annual event in 2008, participants are asked to wear purple to bring awareness to this group of chronic neurological disorders characterized by repeated seizures. Currently, only Canada recognizes Purple Day as an official holiday, but epilepsy ambassadors …

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Purple Day 2022 Awareness Rare Epilepsy

Purple Day 2022: Raising Awareness for Rare Epilepsies

Since 2008, epilepsy advocates in more than 80 countries have celebrated Purple Day, bringing to light a group of chronic neurological disorders characterized by repeated seizures. On March 26th annually, participants are asked to wear purple and participate in epilepsy awareness events. Only Canada currently recognizes Purple Day as an official holiday, but epilepsy ambassadors …

Purple Day 2022: Raising Awareness for Rare Epilepsies Read More »

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Voice of the Patient Research

View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.

Voice of the patient