rare disease

One-on-One Support: Improving Patient and Caregiver Experiences in Clinical Trials

One-on-One Support: Improving Patient and Caregiver Experiences in Clinical Trials

Emotions of fear and uncertainty often flood an individual when they first receive a rare disease diagnosis. Many patients will require assistance with daily tasks and transportation and logistics involved in various doctor’s appointments, treatment methods, and at times, participation in a clinical trial. Patients reach out to family and friends who act as caregivers, […]

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Caring for Rare The Elevated Cost of Rare Disease Patient Care

Caring for Rare: The Elevated Cost of Rare Disease Patient Care

A recent study by the National Institute of Health’s National Center for Advancing Translational Sciences (NCATS) found the costs associated with rare disease patient care are between three to five times higher than the costs to treat those with more common illnesses. In the United States, a rare disease affects less than 1 in 200,000

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Caring for rare: Celebrating Rare Disease Day 2023

Enhancing Patient Access and Retention in Rare Disease Clinical Trials

Featured in an article in PM360, Scott Gray, CEO, discusses new developments in the rare disease clinical trial industry ahead of the upcoming Rare Disease Day on February 28, 2022. Learn more about alleviating financial barriers to trial participation, mitigating geographical barriers to trial participation, and the federal efforts to support rare disease trials in

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Black history month improving equity in healthcare

Black History Month: Shining a Light on Equity in Healthcare

Founded by Dr. Carter G. Woodson in 1926 and officially recognized by President Gerald Ford in 1976, Black History Month is a time to honor the contributions and legacy of African Americans throughout U.S. history and raise awareness of the challenges they face. This year’s Black History Month theme is “Black Health and Wellness,” focusing

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Native American Heritage Month Improve access

Native American Heritage Month – Improving Access and Health Equity

During November, we embrace the cultural diversity of Native Americans while also recognizing the historical controversy and challenges they face. This total of almost 10 million people accounts for 2.9% of the entire United States population. Many Native communities, often residing on reservation lands, face steadily increasing obstacles such as limited resources, increased poverty, diminished access to healthcare services, and certain rare conditions.

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rare disease trials patient support services

BioProcess International eBook: Patient Support for Rare Disease Trials

Download the eBook today! By providing direct support to participants from enrollment through the end of a clinical trial, logistics-management companies can help ease the financial, logistical, and psychological barriers to patient participation in rare disease trials. Such dedicated services can build trust between participants or caregivers and patient coordinators, improving the overall trial experience

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