rare disease

Practical Tips to Boost Clinical Trial Participation and Retention

Practical Tips to Boost Clinical Trial Participation and Retention

Featured on ACRPnet.org: Looking for ways to increase participation in your clinical trials? First, stop calling participants “subjects,” says Scott Gray, CEO of Clincierge, whose organization just released a research report, “Voice of the Patient,” examining the patient experience in clinical trials of rare diseases. “They are volunteers, they are human beings,” Gray says.

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BIO panel takes on patient recruitment, retention challenges

BIO Panel Takes on Patient Recruitment, Retention Challenges

During BIO International, a group of industry experts discussed patient recruitment and retention challenges in the panel discussion Participant Sensitivity: Amplifying the Voice of the Patient in Clinical Trials on Monday, June 13. Outsourcing-Pharma spoke with Clincierge CEO Scott Gray, the moderator of the talk, to get a sneak peek at the session.

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The ‘voice of the patient’ needs to be heard in clinical trials: study

The ‘Voice of the Patient’ Needs to be Heard in Clinical Trials: Study

Featured in The Science Advisory Board: Patient recruitment and retention are among the biggest challenges facing clinical research, particularly in studies targeting rare diseases that have a limited pool of patients, contends Clincierge CEO Scott Gray. At the 2022 Biotechnology Innovation Organization (BIO) International Convention, Clincierge will release the results of an independent, institutional review

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Purple Day 2022 Awareness Rare Epilepsy

Purple Day 2022: Raising Awareness for Rare Epilepsies

Since 2008, epilepsy advocates in more than 80 countries have celebrated Purple Day, bringing to light a group of chronic neurological disorders characterized by repeated seizures. On March 26th annually, participants are asked to wear purple and participate in epilepsy awareness events. Only Canada currently recognizes Purple Day as an official holiday, but epilepsy ambassadors

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