rare disease

2023 Rare Disease Day: Getting Involved to Support the Rare Disease Community

2023 Rare Disease Day: Getting Involved to Support the Rare Disease Community

Each February, the rare disease community celebrates Rare Disease Month. Started in 2008 by the European Organization for Rare Diseases (EURORDIS), the event brings together rare disease patients, caregivers, and advocacy organizations across the globe to advance awareness and increase research opportunities. The Rare Disease Month celebration culminates in Rare Disease Day, held annually on the “rarest day” of the year.

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Empowered Patient Podcast: Rare Disease

Empowered Patient Podcast: Coordinating Patient Participation in Rare Disease Clinical Trials

Clincierge CEO Scott Gray recently joined the Empowered Patient Podcast with Karen Jagoda to discuss specialized patient concierge solutions for participants in rare disease clinical trials. He also explained why Clincierge’s 2023 Rare Disease Day sponsorship felt so natural.

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Empowered Patient Podcast: Rare Disease

Empowered Patient Podcast: Coordinating Patient Participation in Rare Disease Clinical Trials

Clincierge CEO Scott Gray recently joined the Empowered Patient Podcast with Karen Jagoda to discuss specialized patient concierge solutions for participants in rare disease clinical trials. He also explained why Clincierge’s 2023 Rare Disease Day sponsorship felt so natural.

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Amplifying the Patient Voice to Build More Inclusive Clinical Trials

Outlook 2023: Amplifying the Patient Voice to Build More Inclusive Clinical Trials

Clincierge CEO Scott Gray was recently featured in Citeline’s 2023 Outlook. This annual publication showcases industry thought leaders and forecasts market trends within the clinical trial industry. Amplifying the Patient Voice to Build More Inclusive Clinical Trials His piece in Outlook 2023 entitled Amplifying the Patient Voice to Build More Inclusive Clinical Trials discusses ways

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SCRS_INSITE_AMPLIFYING_THE_VOICE_OF_THE_PATIENT_IN_RARE_DISEASE_TRIALS

Amplifying the Voice of the Patient in Rare Disease Trials

Featured in SCRS InSite Journal: Scott Gray, CEO, discusses patient recruitment and retention, two of the most pressing challenges facing clinical research today. Continue reading to learn more about understanding the financial, logistical, and emotional barriers to participation, the consequences of poor retention and enrollment, actionable steps to improve trial outcomes, and other key findings

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