rare disease

2023 Rare Disease Day: Getting Involved to Support the Rare Disease Community

2023 Rare Disease Day: Getting Involved to Support the Rare Disease Community

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Each February, the rare disease community joins together to celebrate Rare Disease Month. Started in 2008 by the European Organization for Rare Diseases (EURORDIS), the event brings together rare disease patients, caregivers, and advocacy organizations across the globe to advance awareness and increase research opportunities. The Rare Disease Month celebration culminates in Rare Disease Day, …

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Caring for rare: Celebrating Rare Disease Day 2023

Caring For Rare: Celebrating Rare Disease Day 2023

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Rare Disease Day 2023 is celebrated on Tuesday, February 28, and raises awareness of the over 7,000 identified rare diseases. Our latest blog will help you learn more about what constitutes a “rare” disease and how patient concierge services can improve recruitment and increase retention in your clinical trials.

Drug discovery predictions: Analysis and insight

Drug Discovery Predictions: Analysis and Insight

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In this Drug Discovery World article, author Megan Thomas spoke with decision makers from the clinical trial industry, including Clincierge’s CEO, Scott Gray, about their predictions on what 2022 holds for our sector, including the importance of patient-centricity and improved stakeholder engagement in clinical trials.

Amplifying the Patient Voice to Build More Inclusive Clinical Trials

Outlook 2023: Amplifying the Patient Voice to Build More Inclusive Clinical Trials

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Clincierge CEO Scott Gray was recently featured in Citeline’s 2023 Outlook. This annual publication showcases industry thought leaders and forecasts market trends within the clinical trial industry. Amplifying the Patient Voice to Build More Inclusive Clinical Trials His piece in Outlook 2023 entitled Amplifying the Patient Voice to Build More Inclusive Clinical Trials discusses ways …

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Amplifying the Voice of the Patient in Rare Disease Trials

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Featured in SCRS InSite Journal: Scott Gray, CEO, discusses patient recruitment and retention, two of the most pressing challenges facing clinical research today. Continue reading to learn more about understanding the financial, logistical, and emotional barriers to participation, the consequences of poor retention and enrollment, actionable steps to improve trial outcomes, and other key findings …

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Voice of the Patient Research

View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.

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Voice of the patient