rare disease

Clincierge Industry Partnerships: Connections Driving Innovation

Clincierge Industry Partnerships: Connections Driving Innovation

Strengthening Relationships Through Partnerships Industry partnerships enhance the flow of communication between clinical trial stakeholders and increase connection to crucial resources. As we strive daily for improved access to and diversity within clinical research, working together strengthens our community and allows us to reach a broader audience. Clincierge has recently partnered with the organizations below. …

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ALS Awareness Month: Whatever It Takes to Find A Cure

ALS Awareness Month 2023: Whatever It Takes to Find A Cure

On May 9, 1992, the United States (US) Senate passed joint resolution 174 designating the month of May as National Amyotrophic Lateral Sclerosis (ALS) Awareness Month. The celebration raises awareness of ALS, a rare and debilitating neurodegenerative disease affecting brain and spinal cord nerve cells. The ALS Association was established in 1985 to support individuals …

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Month of the Military Child: Celebrating the Unique Needs of Military Children Each April

Month of the Military Child: Celebrating the Unique Needs of Military Children

History of Month of the Military Child Former United States Secretary of Defense Caspar Weinberger established the Month of the Military Child in 1986. In America, the month of April recognizes the many sacrifices made and challenges faced by children who are part of a family where at least one parent is a military member. …

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Gene and Cell Therapy: Treating Diseases at the Molecular Level

Gene and Cell Therapy: Treating Diseases at the Molecular Level

A research paper entitled Estimating the Financial Impact of Gene Therapy in the U.S. by The National Bureau of Economic Research (NBER) estimates that 1.09M Americans will receive gene therapy between January 2020 and December 2034. A relatively new science, many have heard of the technology but are unsure what it is or how it …

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Voice of the Patient Research

View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.

Voice of the patient