CheckRare: Reducing Barriers to Participate in Clinical Trials
Clincierge CEO Scott Gray recently spoke to CheckRare on the unique challenges of patients in rare disease clinical trials and ways to reduce barriers to participation.
rare disease day
2023 Rare Disease Day: Getting Involved to Support the Rare Disease Community
Each February, the rare disease community joins together to celebrate Rare Disease Month. Started in 2008 by the European Organization for Rare Diseases (EURORDIS), the event brings together rare disease patients, caregivers, and advocacy organizations across the globe to advance awareness and increase research opportunities. The Rare Disease Month celebration culminates in Rare Disease Day, …
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Empowered Patient Podcast: Coordinating Patient Participation in Rare Disease Clinical Trials
Clincierge CEO Scott Gray recently joined the Empowered Patient Podcast with Karen Jagoda to discuss specialized patient concierge solutions for participants in rare disease clinical trials. He also explained why Clincierge’s 2023 Rare Disease Day sponsorship felt so natural.
Caring For Rare: Celebrating Rare Disease Day 2023
Rare Disease Day 2023 is celebrated on Tuesday, February 28, and raises awareness of the over 7,000 identified rare diseases. Our latest blog will help you learn more about what constitutes a “rare” disease and how patient concierge services can improve recruitment and increase retention in your clinical trials.
Empowered Patient Podcast: Coordinating Patient Participation in Rare Disease Clinical Trials
Clincierge CEO Scott Gray recently joined the Empowered Patient Podcast with Karen Jagoda to discuss specialized patient concierge solutions for participants in rare disease clinical trials. He also explained why Clincierge’s 2023 Rare Disease Day sponsorship felt so natural.
Health Equity and DEI: Are They Synonymous?
Due to a lack of health equity and many existing health disparities for rare disease patients, their access to clinical trial participation is often greatly diminished. With limited education and finances, many do not know about trial opportunities, while others cannot fathom the additional costs of participating.
Enhancing Patient Access and Retention in Rare Disease Clinical Trials
Featured in an article in PM360, Scott Gray, CEO, discusses new developments in the rare disease clinical trial industry ahead of the upcoming Rare Disease Day on February 28, 2022. Learn more about alleviating financial barriers to trial participation, mitigating geographical barriers to trial participation, and the federal efforts to support rare disease trials in …
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Black History Month: Shining a Light on Equity in Healthcare
Founded by Dr. Carter G. Woodson in 1926 and officially recognized by President Gerald Ford in 1976, Black History Month is a time to honor the contributions and legacy of African Americans throughout U.S. history and raise awareness of the challenges they face. This year’s Black History Month theme is “Black Health and Wellness,” focusing …
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Rare Disease Month: Overcoming Obstacles on the Road to Gold
Clincierge celebrates Rare Disease Month throughout February. Since 2008, rare disease patients, caregivers, and advocacy organizations have joined together to bring awareness to the almost 7,000 known rare diseases. February is Rare Disease Month because it contains the “rarest” number of days. The month culminates in Rare Disease Day, held annually on the last day …
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