rare disease day

2023 Rare Disease Day: Getting Involved to Support the Rare Disease Community

2023 Rare Disease Day: Getting Involved to Support the Rare Disease Community

Each February, the rare disease community celebrates Rare Disease Month. Started in 2008 by the European Organization for Rare Diseases (EURORDIS), the event brings together rare disease patients, caregivers, and advocacy organizations across the globe to advance awareness and increase research opportunities. The Rare Disease Month celebration culminates in Rare Disease Day, held annually on the “rarest day” of the year.

2023 Rare Disease Day: Getting Involved to Support the Rare Disease Community Read More »

Empowered Patient Podcast: Rare Disease

Empowered Patient Podcast: Coordinating Patient Participation in Rare Disease Clinical Trials

Clincierge CEO Scott Gray recently joined the Empowered Patient Podcast with Karen Jagoda to discuss specialized patient concierge solutions for participants in rare disease clinical trials. He also explained why Clincierge’s 2023 Rare Disease Day sponsorship felt so natural.

Empowered Patient Podcast: Coordinating Patient Participation in Rare Disease Clinical Trials Read More »

Empowered Patient Podcast: Rare Disease

Empowered Patient Podcast: Coordinating Patient Participation in Rare Disease Clinical Trials

Clincierge CEO Scott Gray recently joined the Empowered Patient Podcast with Karen Jagoda to discuss specialized patient concierge solutions for participants in rare disease clinical trials. He also explained why Clincierge’s 2023 Rare Disease Day sponsorship felt so natural.

Empowered Patient Podcast: Coordinating Patient Participation in Rare Disease Clinical Trials Read More »