als awareness month

ALS Awareness Month: Whatever It Takes to Find A Cure

ALS Awareness Month 2023: Whatever It Takes to Find A Cure

On May 9, 1992, the United States (US) Senate passed joint resolution 174 designating the month of May as National Amyotrophic Lateral Sclerosis (ALS) Awareness Month. The celebration raises awareness of ALS, a rare and debilitating neurodegenerative disease affecting brain and spinal cord nerve cells. The ALS Association was established in 1985 to support individuals …

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Amyotrophic Lateral Sclerosis ALS Awareness Month

Amyotrophic Lateral Sclerosis (ALS) Awareness Month 2022

In 1992, then-President George H.W. Bush designated the month of May as National Amyotrophic Lateral Sclerosis (ALS) Awareness Month with the signing of Proclamation 6426. In the years since, ALS patients, healthcare providers, and advocacy groups have used May of each year to bring attention to this rare disease that attacks the central nervous system. …

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Voice of the Patient Research

View the results of our recent research to explore how effective patient support strategies can reduce barriers, increase retention, and improve outcomes in rare disease clinical trials in our latest eBook.

Voice of the patient